Legacy MattersShe fought against those who would say her life was not worth living. Hers certainly was.
When Harriet McBryde Johnson died earlier this month at the age of 50 from a congenital neuromuscular disease, obituaries called her a "disability-rights activist." This is far too narrow a description of her life. She was less a traditional activist than an acute social conscience. Ms. Johnson forced us to look at disability in a different way -- not as something that we should seek to eradicate, but as something that is integral to the human condition, a "natural part of the human experience," as the American Association of People With Disabilities puts it.
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She was brutally direct when she talked about disabilities, including her own. "Most people don't know how to look at me," she wrote, describing her severely twisted spine and her "jumble of bones in a floppy bag of skin." But she abhorred the "veneer of beneficence" that overlay the arguments of those who said she would be "better off" without her disability. "The presence or absence of a disability doesn't predict quality of life," she argued, challenging Mr. Singer's support of what she called "disability-based infanticide."
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People with disabilities, she said, "have something the world needs."